Chronic Fatigue isn’t just about being ‘tired’, it’s about my whole life

“I’m exhausted” is all I say these days. I get so tired it drives me to tears; tears that are for more than one reason. I cry because I’m so physically exhausted I feel ill, and I cry at what that brings – it interferes with my personal, social and work life. Sometimes I have to let people down at the last minute because my energy has depleted before my day has even started. Even if I’d had a fab sleep, I could wake up feeling like I’ve been up all night. Some nights I am up all night. I hate sleepless nights, I’m always so bored. Nothing interesting on tv, most people are sleeping, even the dogs don’t wanna know. I usually spend the night lay in bed on my phone for an hour, downstairs for a bit, back up, then back down, all the way through til the morning. My phone will bing early usually, and when it does I get excited that the world is waking up. Might sound mad, but that’s how lonely I feel when I can’t sleep, especially when I feel like I could sleep. At the moment, regardless of the amount I sleep at night, I can’t get through a day without having to go and lie down. Sometimes I lie there for hours, other times I sleep for hours. Mostly I lie there feeling absolutely physically drained, while my mind feels foggy. Through the fog, every now and then, I am anxious because I have a lot to do and don’t feel like I have time to be lying in bed for hours. That, is the most frustrating thing. Knowing that the kitchen is a mess (still), that I’ve not hoovered for a couple of days (again), that I have emails and texts to reply to (that are almost a week old). When I’m feeling “exhausted”, I’m speaking literally. My body has just enough energy to keep me breathing at times it feels, and even breathing hurts during these flares, because of the soft tissue around my ribs. Those are the very bad days; which can last weeks actually. 

I was really made up that I did the 5k run last week. Then I was bounced off that high, right back down with a bang when I realised I wouldn’t be able to do it this weekend just gone because I was still in agony and my fatigue was keeping me in bed most of the days. So frustrating wanting to do things I can’t do anymore, or having to go at a slower pace than I’m used to. 

Anyway, if I am to try and remain positive, then I should try to stop looking at what I can’t do about it and see what I can do. I’ve noticed more recently that my imaginative and creative sides are becoming more prominent again. I’m getting more ‘light bulb’ moments with ideas that just pop up. Usually something I can do with the house. My most recent idea was to upcycle an old lamp I was going to get rid of. So I should try to encourage that more in myself at the moment I think, especially when I’m feeling this tired. It will give me something to do, isn’t too physically demanding, it can be an ongoing project that I keep going back to. I need to do something so I don’t go insane. And I don’t mean insane from boredom, I mean I need to do something, because at least I won’t then be doing nothing. Doing ‘something’ is better than ‘nothing’, for me anyway! 

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