Mental health: what support is needed?

I have been thinking for some time now about trying to get back into my writing. I seemed to have got a block of some sort and every time I tried to write I didn’t know what I wanted to say.

I guess the best thing would be to start off from my last post in December 2019… however, if you know me you’ll know I can’t remember what I had for breakfast. I remember there being something about a pandemic?

It’s been almost 7 years now since ‘No Secrets’ ceased as a charity and I thought that part of my life was over. But recently, from speaking to different people about mental health, my passion to help people is growing.
There were many reasons I decided to quit No Secrets. When I was preparing to be discharged from community mental health team, I felt it was an important time to focus on myself and my recovery. For 10 years the thought of being discharged and not having that ‘professional’ safety net was terrifying. Now that it had come, I felt like I needed to take a step back from the whole mental health setting completely.

The main reason was exhaustion. I was struggling to keep up with myself. I was working every day. We started with me and my mum, and a support group in St Helens. By the time we registered as a charity a few years later, we had set up support groups in Wigan, Warrington & Halton. We also did group sessions for inpatients in Leigh. We were rolling out training for professionals and those working in health and/or mental health settings. It grew way too big for me to manage. And whilst we had some extremely valuable support from everyone on the committee, it just got too much.

In the first couple of years, it was nice to have more time on my hands and it helped me to focus on my own recovery journey. But every now and then it would creep back into my mind and I’d still have that passion for helping people.

I have changed so much in the last 7 years; I think now it’s my time to start something. I want to share with others, how I got through my urges to self harm. How I moved on from being so dependant upon services. How I embraced the one thing that I feared so much. How I survived it.

But I have no idea what to do or how to do it. An online support group is an idea I’ve been mulling over. That way, it doesn’t have to stay local and could reach many more people across the country.

If you have any ideas about how we can rewrite the narratives of self harm please let me know. What is it that we are missing? What is it that people need?

How should counselling feel? Mumbo-jumbo, questions and.. shit! 

Those who know me will know I am always open and honest in my writing and I don’t hold back; especially when it comes to mental health.

Towards the beginning of this year I decided to re-enter into ‘therapy’ after my GP suggested it could help me to come to terms with my deteriorating fatigue and pain. I self-referred, as per my GP’s advice, to the primary care service. Within a week of referring myself I had a telephone consultation with somebody, so I could explain what had been happening. This enables the service to then signpost or offer further support. I discussed my inability to come to terms with the fact that I cannot do what people of my age can do; as a result of physical and/or mental health problems. I cannot work, because every single day is different. I do not know how bad or good I may feel. I struggle to wake up to an alarm; no matter how early or late it may be. Some days I struggle to simply wake up and it can take me the whole day to ‘come to’. Those days, I rely heavily on Bex helping me out (I’d be lost without her). I struggle to concentrate for long periods of time. Sometimes I cannot concentrate on anything. I have slowly gone from being somebody who is super organised, to somebody who relies again, heavily on Bex to help me remember appointments. Sometimes, if not all the time, Bex will have to remind me of my plans for the day, several times. Only yesterday she had to remind me of something over and over again. And still, I need a reminder within 1 hour of that appointment because my memory just struggles so much to retain information. 

Anyway, back to this telephone assessment. After about half an hour it was agreed that I could benefit from some counselling. Initially, as with most places, I could have 6 sessions with the potential for a further 6 if needed. I was happy for my name to be put on the waiting list. Then she informed me that the wait was 6 months at the very least. Great. I actually genuinely understand that resources are stretched and I am not saying people should be seen ‘immediately’. However; my GP suggested counselling because I am struggling now, not in 6+ months. 

I knew at that point that I was going to have to look for something. After a bit of research, I found somebody that offered online counselling sessions; ideal for me. It means I can have counselling without having the added stress of physically going anywhere. Plus, it helps me to feel ‘safer’ having some anonymity. The cost of going private means I can’t have weekly sessions; which is the ideal. But, the way I felt at that time meant that every fortnight would still be better than nothing.

After an initial conversation online, with a counsellor, I kind of knew she was the right one. And I have to say; this is THE best therapy so far (and I have had a lot in my time). After a session yesterday, I got thinking about the process. I wonder why it works so well this time? What is different this time? How had it become that I felt great after each session? Was it to do with the counsellor, or was it to do with me? And is this how it feels when it really works? Is this what counselling should look like? And if so, why had it never looked like this before?

So many questions running around a tired, tiny brain. I have some potential ideas in response to those questions, which I will happily share with you in my next post. So watch this space 👍

Annnnnnnnd relax 😊❤

Mental health care; Sara Green was not a ‘one off’

I’m watching Panorama, I’m broken inside: Sara’s story. I feel really saddened that none of what I’m hearing is a shock to me; because I have either seen things like this or experienced things like this. Luckily for me, I never managed to succeed in my suicide attempts. Sadly, 17 year old Sara Green, in this episode, died in a psychiatric unit for children & young people. She made a wire ligature and sadly couldn’t be saved. 

I have no idea where to start to be honest.  First the fact that she was moved into inpatient care miles away from her family. So far, they lived on tuna sandwiches for a week so they had enough money to travel to see her. And they could only financially manage to visit her twice a month. That was a close call for me on one occasion when there were no beds locally and I might have gone to yorkshire. Lucky for me, a bed in a neighbouring borough became available. 

The staff at The Priory, where Sara was being cared for, cut off her hair using ligature cutters, whilst she was being restrained. Why? Because she had threatened to ligature using her hair. Now, where do you draw the line? How is this not assault? I fully agree it’s important to keep vulnerable and unwell people as safe as possible by first, removing or reducing any risks. If she had blades they’d have been removed. But they would take her sight so she couldn’t seek out more blades. They wouldn’t chop off her legs if she threatened to abscond. But it’s fine for them to hack her hair off? Personally, I think that’s a disgrace, but that’s just my opinion.

Having been in hospital many times before, I fully understand that certain behaviours can be learned through seeing other patient’s do things. To be honest, before I first went into hospital, I’d never considered ligaturing as a way of self harming or attempting suicide. But on each stay in hospital, I’d usually clock up a few ligature attempts in my notes. The first time somebody else on the ward ligatured, unfortunately for me, it was a serious one. I heard all the commotion, the alarms, staff shouting to each other down the corridors, their bunches of keys clashing as they ran to their patient and colleagues. I remember lying on the bed, heart pounding, felt terrified. And whenever I felt the need to self-harm or attempt to end my life after this, I would usually find or make a ligature. Usually when I did this, it was a suicide attempt. Whether or not I actually wanted to die, I don’t know. At that moment in time, I felt like, and thought that I did. But looking back, I realise that deep down, I usually wanted to be found, stopped and supported. I was always found (thankfully), and stopped. Hardly ever supported though. Usually, I’d have my room stripped. On one occasion, my room was stripped of everything. I was lay on the bed in a state after I’d just had a ligature cut from my neck by staff. The ligature was removed and all staff in the room left. I lay crying alone, feeling so desperate. A couple of minutes later, 2 staff members came into my room, armed with bags. They literally took all my belongings from my room, stuffed everything into bags like they were cleaning up rubbish. What happened next is something I still feel humiliated about. They stood over me asking me to take off my clothes and wear the hospital nighty they had brought for me. First, I was shocked. I refused to even move. They tried to persuade me, and when I didn’t budge, they told me that if I didn’t strip off myself, they would have to do it for me. So reluctantly, I took off my top. I took off my bottoms. Still wasn’t enough. I cried my eyes out as they sat on the bed with me and watched me take off my underwear, socks included. I put on the nighty, still sobbing, I watched them bag the clothes I’d taken off and proceed out of the room with everything I’d brought in. I sobbed for ages. I begged for my things back. But nobody saw that distress, they explained it was for my own good… That if I didn’t have anything, I couldn’t try anything. Trust me; if you were to lock me in a room with nothing, I would still find a way to hurt myself if I am in that frame of mind. There were times where I actually bit myself because I felt so desperate to hurt myself. When they found out I was doing that, I was no longer allowed to stay in my room apart from at night time to sleep. I’d be forced to sit in ‘social areas’ where they could ‘keep an eye on me’. Well I’ll tell you now, when you’re dosed up on drugs that zonk you, you really just want to sleep it off in a quiet private place. Not in the lounge where other unwell patients would come in & out, some noisy some not so!

I had one admission where they stripped my room, and I had to ask staff to unlock the cupboard whenever I wanted something. Then they would sigh and moan every time I’d ask for something, because they were so busy. Every morning I’d need my toothbrush, toothpaste, clothes, hair brush, deodorant etc. Every evening the same. For the whole of my time there (approx 6 weeks). I felt degraded, ashamed (other patients would watch as I’d follow a member of staff to the cupboard to get what I needed) & felt like I had no privacy. Picking out underwear in front of others every day isn’t a great feeling. 

Having just finished watching Sara’s story, I realise I am one of the lucky ones. The bad experiences I had were nothing compared to hers and other people’s stories. I’ve seen and heard so much, and things are continuing to spiral as the Government cut funding. Services are failing; letting both their staff & patients down so much. Wards are understaffed, staff are stressed & when incidents occur, they struggle to keep everything contained and keep everyone safe. 

It worries me, it angers me, it saddens me and it frightens me. How much longer can services go on like this?